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FSHD Global - Cure FSHD App

Started by Georgia - · 14 Apr 2025 · 34 views

  1. G

    Georgia -

    1 year ago

    Thought this might be of interest to those with FSHD.

    https://youtu.be/xhHyM2oaABE?feature=shared

    https://player.captivate.fm/episode/cf3be579-742e-4686-b5f2-601d77d58967
  2. T

    TheLoopAus

    1 year ago

    Thanks so much for sharing @Georgia
  3. G

    Georgia -

    1 year ago

    @TheLoopAus Pleasure!
    It's important to note that this is a patient led registery to be "clinical trial ready" and part of the Treat NMD global registry framework. Thank you FSHD Global Research Foundation 💞

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