Capital Region Muscular Dystrophy
Office Address
260 Crawford Street
Queanbeyan NSW 2620
Phone: 0429 382 502
Email: enquiries@capitalregionmd.org.au
Services: advocacy, support, equipment provision, accessible sports programs, exercise programs
Carers Association of WA
A not-for-profit, community based organisation dedicated to improving the lives of family carers living in Western Australia. They work in active partnerships with carers, persons with care and support needs, health professionals, service providers and the wider community to achieve their goals.
They provide many services including support events, as well as links to other charities that may be of support to carers, and information on government support and respite services.
Advocating & Supporting Family Carers in WA | Carers WA
Children’s Hospital, Westmead
Paediatric Neuromuscular Clinic
02 9845 1325
https://www.schn.health.nsw.go...
Commonwealth Respite and Carelink Centres
Commonwealth Respite and Carelink Centres (CRCCs) aim to contribute to the support and maintenance of caring relationships by facilitating access to information, respite care and other support appropriate to carer’s needs and circumstances, and the needs of the people they care for.
The national network of CRCCs provides a link to carer support services and assists carers with options to take a break through short-term and emergency respite. Where appropriate, a CRCC can help with putting in place regular respite for a carer to reduce the need for unplanned and emergency respite. CRCCs also provide information about carer support services in their local area.
CRCCs provide free and confidential information on local carer support, disability and community services.
The nearest CRCC can be contacted by phoning 180 052 222 during business hours or 1800 059 059 for emergency respite support outside standard business hours.
Concord Hospital, Concord
Neuromuscular Clinic
02 9767 6864 or 9767 6129
http://www.concordhospital.com...
Department of Communities WA
Working collaboratively with partners across government and the community services sector to deliver disability services, child protection and family support, housing, and community and regional
initiatives.
Ph: 1800 176 888
https://www.wa.gov.au/organisa...
John Hunter Children’s Hospital, Newcastle NSW
Paediatric Neuromuscular Clinic
02 4921 3932
https://www.hnekidshealth.nsw....
Muscular Dystrophy NSW
Office Address
Studdy MS Centre
80 Betty Cuthbert
Dr Lidcombe NSW 2141
Freecall: 1800 635 109
Phone: (02) 9888 5711
Fax: (02) 9887 4423
Email: info@mdnsw.org.au
Services: support coordination, information and referral, advocacy, camp program, peer support, events
Muscular Dystrophy Queensland
Office Address
1149 Sandgate Rd
Nundah QLD 4012
Postal Address
Locked Bag 300
Eagle Farm BC QLD 4009
Freecall: 1800 676 364
Phone: (07) 3243 9700
Fax: (07) 3123 6606
Services: NDIS plan management, support coordination, specialist support coordination, physiotherapy, occupational therapy, social work, counselling, therapy assistant, ECEI key worker, ECEI allied health services, NDIS pre-planning, NDIS access support, advocacy, Cough Assist loan, Hi-Lo bed loan, helpline, information, regional outreach
Muscular Dystrophy Tasmania
Office Address
13 William Cooper Drive
NEW TOWN, TAS 7008
Phone: 0400 877 137
Services: fundraising events, education and information, equipment provision, advocacy
National Disability Insurance Scheme (NDIS)
https://www.ndis.gov.au/applying-access-ndis/am-i-eligible
Neuromuscular Clinic Campbelltown Hospital
Adult Neurology Outpatients Dept
02 4634 4963
Dr Sumana Gopinath-Staff Specialist Neurologist
https://www.swslhd.health.nsw....
Neuromuscular WA
Office Address
Suite B, The Niche
11 Aberdare Road
Nedlands WA 6009
Postal Address PO Box 680
Nedlands WA 6909
Phone: (08) 9380 3400
Email: admin@neuromuscularwa.org.au
Services: advocacy, education and information, social support program, grants, counselling, equipment, research
Prince of Wales Hospital, Randwick
Adult Nerve & Muscle Clinic
02 9382 2422
https://seslhd.health.nsw.gov....
Reimagine Australia
Reimagine Australia formally know as ECIA is the peak national organisation promoting the interests of young children with disability. They facilitate a child’s development from early childhood to ensure that they are able to take part in everyday activities and be included in family and community life. Reimagine Australia can put you in contact with a number of professionals who work as a team around your child, providing therapy/education, counselling, service planning and coordination and potentially assistance to accessing services such as kindergarten and child-care.
Services are tailored to meet the individual needs of the child and are focused on supporting the child in their natural environments and their everyday experiences and activities.
For further information https://re-imagine.com.au/
Royal North Shore Hospital, St Leonards
Adult Neuromuscular Clinic
02 9463 1833
Adult Neurogenetics Clinic
02 9463 1828
https://www.nslhd.health.nsw.g...
Sydney Children’s Hospital, Randwick
Paediatric Neuromuscular Clinic
02 9382 1845
https://www.schn.health.nsw.go...
Sydney Children’s Hospital, Randwick
Paediatric Neuromuscular Clinic 02 9382 1845
https://www.schn.health.nsw.go...
Westmead Hospital, Westmead
Adult Neuromuscular Clinic
02 8890 8738
Fax: 8890 9820
Adult Genetics Clinic
02 8890 9780
https://www.wslhd.health.nsw.g...
Young Carers Bereavement Program (Lionheart Camp for Kids)
This Perth-based program supports grieving children from ages 5-12 following the death of a parent, primary care-giver or sibling. The Lionheart Camp for Kids is a two-day camp for both children and their parents, with separate parent and child based programs focusing on the specific needs of the group.
In addition to camp programs, Lionheart provide ongoing programs and events throughout the year to support grieving families.
For more information email lionheartfoundationwa@gmail.com.
Young Carers WA
Young carers are people under the age of 26 who help look after a family member who needs extra support at home. This may include young parents, young extended family members, siblings and friends of someone with a disability, as well as their children if they have any.
Young Carers WA offers support, information and various resources to young carers, as well as schools. Their aim is to help young carers handle their extra responsibilities, and make sure that schools and other institutions properly accommodate their caring role.
More information can be found at their website: https://www.carerswa.asn.au/our-services/young-carers/
